For those of you signed up with MGFA (Myasthenia Gravis Foundation of America), you should have recently received an email with resources to use during Myasthenia Gravis Awareness Month, which is June. The email provides some great ideas on how to increase awareness about Myasthenia Gravis and also provides some tools you can use in the process.
If you’re not already registered with MGFA, I would highly encourage you to do so. Just go to: https://myasthenia.org/?vcrmeid=EBKmtqM0UyopFrt3oOf2A&vcrmiid=8vJHmTxrPUSSS2u5qme5zA
Hit the “Connect With Us” button to join.
This year’s campaign is focused on shining a spotlight on the signs and symptoms of MG. Sharing this information will allow you to help friends, family and the public understand what you or your loved one with MG is going through.
The email says, “Imagine slurring your speech or struggling to walk from the parking lot to the grocery store. This is a daily reality for so many people living with Myasthenia Gravis. Now imagine being judged for these symptoms, over which you have no control.” And, “Picture your muscles giving out while exercising. When that personal trainer tells you just one more and you know you don’t have one more; your muscles are exhausted. That’s what it’s like for people with MG.”
When you talk about MG, you help others understand the difference between “looking fine” and “feeling fine.”
If you have Myasthenia Gravis, you’ve probably run into the situation where people ask you what MG is or tell you they’ve never heard of it. The tools provided by MGFA, and especially the 30 Facts for 30 Days sheet, will help you explain.
I truly hope you decide to get involved this June during Myasthenia Gravis Awareness Month. Let’s all take action for awareness!
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