Living with Myasthenia Gravis (MG) can be challenging, but there are some small changes you can make in your home to help make daily life more manageable and comfortable. These practical adjustments can help enhance safety, improve quality of life and maybe even conserve energy, all without requiring major renovations in your home.
- Organize for Accessibility – Keeping frequently used items within easy reach reduces the physical effort needed for daily tasks.
- Store essentials at waist level – Place kitchen items like dishes, utensils, pots and pans, and even grocery staples on countertops or in cabinets between waist and shoulder height to avoid unnecessary bending and reaching. Try not to store anything used frequently on a shelf that requires a step stool or ladder. If you need something from a difficult to reach place, get someone to help you.
- Use Lightweight Tools – Cookware such as aluminum pots and pans are often much lighter than cast iron or other alternatives.
- Create a grab-and-go station – Set up a designated area with medications, water bottles, snacks, and other daily necessities to limit unnecessary movement.
- Simplify Household Chores – Fatigue is very common with MG, so streamlining chores can save energy for more enjoyable activities.
- Break tasks into smaller steps – Instead of cleaning the entire house at once, tackle one section like the kitchen and rest before moving on to the next room. You may want to even consider doing a room or two a day, so as not to overextend yourself.
- Use ergonomic tools – Invest in lightweight vacuums, long-handled dusters, or robotic cleaners to reduce physical exertion.
- Delegate or schedule – Spread chores across the week and enlist help from family or services for heavier tasks like laundry or yard work.
- Enhance Safety in Key Areas – Muscle weakness increases risks of falls, so making your home safer is crucial.
- Install grab bars and handrails – Add grab bars in the bathroom (near the toilet and shower) and handrails on staircases for extra support.
- Remove tripping hazards – Clear clutter, secure loose rugs with double-sided tape, and ensure walkways are well-lit.
- Use non-slip mats or rugs – Place non-slip mats or rugs in the bathroom and kitchen to prevent slips, especially during moments of fatigue. Important Note: If mats or rugs pose a tripping hazard, remove them from the area.
- Optimize Furniture and Layout – Adjusting your home’s layout can make movement easier and more comfortable.
- Choose supportive seating – Opt for chairs with firm cushions, armrests, and a high back to make sitting and standing easier. A recliner with a lift function can be a game-changer. Designate aisles and pathways around your house and keep them clear to help you navigate the house easier.
- Consider an adjustable bed – An adjustable bed which can be shaped and contoured at your direction can aid in sleep and accommodate tired muscles. An adjustable bed or frame can also help make getting in and out of bed less strenuous.
- Create rest zones – Place comfortable seating in multiple rooms so you can rest as needed without retreating to the bedroom.
- Manage Energy with Smart Technology – Technology can reduce physical demands and help you stay independent.
- Phone and Technology Chargers – Keep chargers for your phone and/or tablet near your favorite spot so you can keep your phone charged at all times. Consider a second set of chargers in your bedroom so you don’t have to move chargers before going to bed.
- Voice-activated devices – Use smart assistants like Apple HomePod, Amazon Echo or Google Home to control lights, thermostats, or even order groceries without moving.
- Automatic appliances – Consider a robotic vacuum or a dishwasher to handle repetitive tasks.
- Timer reminders – Set up alarms on your phone or a smart device to remind you when to take medications or rest breaks. This will help you manage symptoms proactively.
- Create a Comfortable Environment – A soothing home environment can help manage stress, which can worsen MG symptoms.
- Control lighting – Use adjustable lighting to reduce eye strain, as MG can affect eye muscles. Dimmer switches or lamps with soft bulbs work well.
- Maintain a cool temperature – MG symptoms can worsen with heat, so use air conditioning, fans, or lightweight bedding to stay comfortable.
- Add calming elements – Incorporate soft textures, plants, or calming colors to create a restful atmosphere that supports mental well-being.
- Let the sun shine in – Open the blinds and get some sun into your home. Dark dingy places breeds depression, so pop open those shades each morning and enjoy the sunlight. If possible, go outside, take a short walk, or sit on your porch or bench in a park. You’ll be amazed how much better you feel when your allow light into your life.
- Plan for Rest and Recovery – Rest is critical to managing MG, so make it a priority in your home.
- Set up a rest nook – Designate a quiet corner, a comfortable chair, or your favorite spot on the couch as “your special place”. Keep pillows and blankets nearby for quick naps and relaxation.
- Use supportive pillows – Wedge pillows or cervical pillows can help with comfortable positioning during rest, especially if breathing muscles are affected.
- Keep a symptom journal – Place a notebook or table in an accessible spot to track symptoms, triggers, and energy levels. Sharing this information with your healthcare team can assist them in suggesting the best treatment for your situation.
Living with Myasthenia Gravis doesn’t mean you have to overhaul your home. Small, thoughtful changes can make a big difference in staying safe and maintaining independence. Always consult with your healthcare provider for personalized recommendations, as MG symptoms vary. By tailoring your space to your needs, you can create a home that supports your health and well-being.
Stay #MGStrong!