My blog this morning is going to be very short. That’s because I’m going to recommend you read an article recently published on People. It’s entitled:
My Years of Leg Pain Turned Out to Be ALS: Why the Terminal Diagnosis Isn’t Even the Scariest Part
You can find the article here: https://people.com/i-was-diagnosed-with-als-at-33-heres-scariest-part-of-my-diagnosis-exclusive-8766440#:~:text=Brooke%20Eby%20was%20diagnosed%20with,a%20limp%20in%20one%20leg.
It’s the story of Brooke Eby, who at the age of 33, learned she had ALS. What captured me so much about her story is not what she’s going through, but what she’s doing with her life in spite of ALS. She has become a champion for those who have received an ALS diagnosis. Her foundation is doing some amazing things.
While I do what I can with my blogs for Myasthenia Gravis, my age prevents me from truly championing the MG cause. My hopes are that one of you, who has the inspiration and courage, will take on the MG fight like Brooke has taken up for ALS. We need you.
The MGFA (Myasthenia Gravis Foundation of America does a wonderful job of educating and providing resources for people with MG, their families and caregivers. I would highly encourage you to check them out, if you haven’t done so already. At the same time, we need individuals who are willing to share their stories and fight for the cause much like Brooke Eby does for ALS.
Please take the time to read this amazing article about this amazing young woman.